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Latest News about Rare Diseases
Listening and Learning From the Rare Disease Patient
August 07, 2019
Shire’s Partnership with SeriousFun Children’s Network Enabled Nearly 1,000 Children with Serious Illnesses to Attend Life-Changing Camps
December 19, 2018
category Partnerships , Responsible Business & Employee Engagement , Health & Healthcare , and 11 more.
Keystone Symposia and Vienna BioCenter Launch Scientific Research Conference Series in Vienna, Austria
November 07, 2018
UAB Selects XpertDox Clinical Trial Recruitment Platform To Accelerate Medical Research
July 31, 2018
The ACMG Foundation for Genetic and Genomic Medicine Announces the Four Recipients of the 2018 Shire/ACMG Foundation Next Generation Fellowship Awards
April 29, 2018
category Pharma News, Research & Solutions , Philanthropy & Cause Initiatives , Grants , and 8 more.
XpertDox launches XpertTrial, a search engine for finding ongoing clinical trials for over 6,000 diseases
November 29, 2017
Analyst: Entrectinib's Potential Gives Ignyta's Stock 116% Upside
October 18, 2017
Sarepta's Upside Story Is Just Getting Started
October 02, 2017
3 Reasons To Like Vertex Pharma Shares
September 29, 2017
2017 on Track to be a Record Breaking Year for Orphan Drug Approvals
September 08, 2017
Shire: Innovative Therapies for Rare Diseases
September 01, 2017
Ultragenyx Discontinues Phase 3 GNE Myopathy Study
August 23, 2017
Delivering Outstanding Rare Care: Q&A Released with Rare Disease revolutioner, Larissa Kerecuk, Ahead of Orphan Drugs Conference
August 15, 2017
Rare Diseases Get Their Turn in the Spotlight
April 20, 2017
category Paroxysmal nocturnal hemoglobinuria (PNH) , Akari Therapeutics , Health & Medicine , and 3 more.
4 Insects Used to Treat Wounds and Diseases
April 11, 2017
Improving Diagnostic Pathways for Rare Disease Patients
April 10, 2017
category Research, Reports & Publications , Fabry disease , Improving Healthcare Access , and 12 more.
Shire Issues 2016 Annual Responsibility Review
March 22, 2017
Gene Therapy for Rare Diseases: Challenges & opportunities explored by Genetic Alliance UK, Chiesi Farmaceutici, Horizon Pharma & Alexion Pharma Int
March 21, 2017
Shire and SeriousFun: Our First Year Together
February 26, 2017
The Worst Disease You’ve Never Heard of is Just as Common as Cystic Fibrosis and ALS
February 08, 2017
Orphan Drugs: What Are They?
November 02, 2016
Retrophin Up 40% On Kidney Disease Drug Trial, Shkreli Still Wants His $25+ Million 'Hogan Reward'
September 07, 2016