INDIANAPOLIS - July 21, 2024 - PRLog -- INAD Warriors is pleased to announce the result of a $100,000 grant call aimed at advancing research in PLA2G6-associated Neurodegeneration (PLAN) disorders which includes Infantile Neuroaxonal Dystrophy (INAD).  This grant initiative from NBIA Disorders Association was made possible by a $70,000 donation from funds raised at the INAD Warriors Inaugural Blue Ties & Diamonds Gala last August and additional donors within the community.

Following the review of several applications from researchers worldwide, Dr. Ivano Di Meo of the Foundation IRCCS Neurological Institute Carlo Besta (FINCB), in Milan, Italy was selected to receive the grant funding.  His project, titled "Exploring Circulating Biomarkers to illuminate PLAN Pathophysiology and Therapeutic Guidance," seeks to address gaps in the understanding of PLAN and better prepare the community for future clinical trials.

Biomarkers, found in blood and other tissues, serve as measurable endpoints for researchers to understand the disease and the impact of potential treatments. "Thanks to our generous donors this grant is made possible, and we are excited and hopeful data from this project will result in a better understanding of PLA2G6 gene disorders, including INAD, and support research of a potential treatment in future human clinical trials." said INAD Warriors President, Heather Prentice.

This year INAD Warriors will host approximately 250 guests at the sold out second annual fundraising Blue Ties & Diamonds Gala on August 24th at the historic Columbia Club Ballroom in downtown Indianapolis. The Gatsby themed evening will be focused on raising awareness and financial support for the mission to enable future research. To learn more follow us on social media including Facebook and Instagram.

ABOUT INAD WARRIORS, INC.
INAD Warriors, Inc. is a nonprofit inspired by Warner Kays' courageous journey.  The INAD Warriors, Inc. mission is to raise awareness in the global community about infantile neuroaxonal dystrophy (INAD) and the related PLA2G6 gene disorders.  Through grassroots fundraising we are empowering the research community to find the first approved treatments to slow progression and potentially one day cure this ultra rare disease.

ABOUT INAD
Infantile Neuroaxonal Dystrophy (INAD) is an ultra rare (affects an estimated 1 in 1 million to 2 million children) inherited neurodegenerative disorder. It destroys axons, the part of the neuron (nerve cell) that carries messages from the brain to other parts of the body through buildup of fatty substances (lipids) on the nerves. In the beginning a child with INAD will appear to be developing normally.  But around the ages of 6 months to 3 years developmental milestones will begin to slow down and regress. Some of the first signs and symptoms may be changes in a child's vision, loss of motor skills, and developmental regression.

ABOUT NBIA DISORDERS ASSOCIATION
Established in 1996, the NBIA Disorders Association provides vital support to NBIA families, educates the public, and collaborates with researchers worldwide. As leaders in family support, they maintain an informative website and host biennial International Family Conferences, fostering connections and promoting knowledge-sharing within the community. To date, NBIA Disorders Association has contributed nearly $3 million in research grants worldwide, dedicated to finding treatments and cures for all NBIA disorders.