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Latest News about rare disease patient registries
Recent news which mentions rare disease patient registries
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
September 14, 2021
Tickers
RWD
RWE
Tags
Real World Evidence
chronic kidney disease
RWE
From
PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
August 12, 2021
Tickers
RWD
RWE
Tags
PIP/UK
Pharmaceutical
rare disease platform
From
PRUnderground
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