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Latest News about RWD

Recent news which mentions RWD

Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
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Tags RWE drug development Timothy Syndrome
From PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
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Tags biotech RWE drug development
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Ensuring No Duplicates: Implementing Pulse Infoframe’s GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
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Tags RWE GUID no duplication
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Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
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Tags drug development RWE biotech
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PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
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Tags RWE drug development biotech
From PRUnderground