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Latest News about Real/World Data

Recent news which mentions Real/World Data

Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
Tickers RWD RWE
Tags rare disease platform patient advocacy Pharmaceutical
From PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
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Tags QOL validated instruments Pharmaceutical
From PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
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Tags CKD rare disease patient registries rare disease platform
From PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
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Tags PGHD Real World Evidence patient/generated health data
From PRUnderground