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Latest News about rare disease
Recent news which mentions rare disease
FDA Selects Moderna's Rare Disease Candidate For Accelerated Development Program
June 06, 2024
Tickers
MRNA
NEWS
Tags
Stories That Matter
Rare Disease
why it's moving
From
Benzinga
Exploring Pathways in Immune-Mediated Diseases To Advance Patient Care
September 14, 2022
Tickers
BMY
Tags
Responsible Business & Employee Engagement
Pathway Medicine
Bristol Myers Squibb
From
3BL Media: Corporate Social Responsibility, Energy and Health News
The United States Thrombotic Microangiopathy Alliance and Consortium Announces Website Launch
August 03, 2022
Tickers
TTP
Tags
Patients
TTP
aHUS
From
PRUnderground
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
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RWD
RWE
Tags
RWD
rare disease platform
RWE
From
PRUnderground
Two Different Rare Diseases Before Age 20: Chansen Savakinus’ Rare Disease Day Message
February 25, 2022
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FCF
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Health and Nutrition
Awareness
Medical
From
PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
Tickers
PRO
RWD
RWE
Tags
patient reported outcomes
Pulse Infoframe
drug development
From
PRUnderground
Making Noise to Find Cures. Fibrolamellar Cancer Foundation Raises Awareness for #RareCancerDay 9/30/21
September 28, 2021
Tickers
FCF
Tags
liver cancer
Fibrolamellar
Medical Research
From
PRUnderground
SMASHFEST Fundraiser Skates Into Stamford
August 08, 2021
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FCF
NHL
Tags
Medical
FCF
Cancer
From
PRUnderground
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