Latest News about rare disease
Recent news which mentions rare disease
FDA Selects Moderna's Rare Disease Candidate For Accelerated Development Program
June 06, 2024
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MRNA
NEWS
Tags
Rare Disease
Stories That Matter
General
From
Benzinga
Exploring Pathways in Immune-Mediated Diseases To Advance Patient Care
September 14, 2022
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BMY
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rare disease
NYSE: BMY
Health & Healthcare
From
3BL Media: Corporate Social Responsibility, Energy and Health News
The United States Thrombotic Microangiopathy Alliance and Consortium Announces Website Launch
August 03, 2022
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TTP
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Healthcare
rare disease
TTP
From
PRUnderground
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
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RWD
RWE
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Real/World Data
Patient Registries
biotech
From
PRUnderground
Two Different Rare Diseases Before Age 20: Chansen Savakinus’ Rare Disease Day Message
February 25, 2022
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FCF
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Medical
Cancer
FCF
From
PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
Tickers
PRO
RWD
RWE
Tags
Real/World Data
Patient Registries
QOL
From
PRUnderground
Making Noise to Find Cures. Fibrolamellar Cancer Foundation Raises Awareness for #RareCancerDay 9/30/21
September 28, 2021
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FCF
Tags
FCF
Health & Fitness
Cancer
From
PRUnderground
SMASHFEST Fundraiser Skates Into Stamford
August 08, 2021
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FCF
NHL
Tags
Fibrolamellar
Non Profit
liver cancer
From
PRUnderground
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