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Latest News about Real World Evidence
Recent news which mentions Real World Evidence
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
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RWD
RWE
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Pharmaceutical
rare disease platform
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From
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The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
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PRO
RWD
RWE
Tags
rare disease
Real/World Data
Clinical Outcome Assessment
From
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Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
September 14, 2021
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RWE
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rare kidney disease
Real/World Data
Patient Registries
From
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PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
August 12, 2021
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rare disease patient registries
Real World Evidence
FDA
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