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Latest News about RWD

Recent news which mentions RWD

Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
Tickers RWD RWE
Tags rare disease platform Pharmaceutical Real/World Data
From PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
Tickers PRO RWD RWE
Tags patient advocacy patient reported outcomes RWE registries
From PRUnderground
Ensuring No Duplicates: Implementing Pulse Infoframe’s GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
November 23, 2021
Tickers RWD RWE
Tags Global Unique Identifier RWE RWD
From PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
September 14, 2021
Tickers RWD RWE
Tags Real/World Data Pharmaceutical rare disease patient registries
From PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
August 12, 2021
Tickers RWD RWE
Tags Drug Repurposing PIP/UK FDA
From PRUnderground
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