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Latest News about RWD

Recent news which mentions RWD

Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
Tickers RWD RWE
Tags rare disease platform patient advocacy Pharmaceutical
From PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
Tickers PRO RWD RWE
Tags biotech RWE drug development
From PRUnderground
Ensuring No Duplicates: Implementing Pulse Infoframe’s GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
Tickers RWD RWE
Tags patient advocacy biotech CDKL5
From PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
Tickers RWD RWE
Tags rare kidney disease Healthcare Real World Evidence
From PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
Tickers RWD RWE
Tags Poland Syndrome RWD Patient Registries
From PRUnderground
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