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Latest News about RWD
Recent news which mentions RWD
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
Tickers
RWD
RWE
Tags
Patient Registries
rare disease
Real/World Data
From
PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
Tickers
PRO
RWD
RWE
Tags
patient advocacy
Myrovlytis Trust
patient reported outcomes
From
PRUnderground
Ensuring No Duplicates: Implementing Pulse Infoframe’s GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
November 23, 2021
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RWE
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CDKL5
RWD
RWE
From
PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
September 14, 2021
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RWD
RWE
Tags
Centralized Platform
Real World Evidence
rare disease platform
From
PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
August 12, 2021
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RWD
RWE
Tags
Poland Syndrome
Pharmaceutical
Real/World Data
From
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