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Latest News about RWD

Recent news which mentions RWD

Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
Tickers RWD RWE
Tags CACNA1C Cancer patient advocacy
From PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
Tickers PRO RWD RWE
Tags drug development Patient Registries Myrovlytis Trust
From PRUnderground
Ensuring No Duplicates: Implementing Pulse Infoframe’s GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
Tickers RWD RWE
Tags LouLou Foundation patient advocacy RWD
From PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
Tickers RWD RWE
Tags rare disease patient registries rare disease platform drug development
From PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
Tickers RWD RWE
Tags RWD Drug Repurposing patient advocacy
From PRUnderground
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