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Latest News about patient advocacy

Recent news which mentions patient advocacy

Patient Advocacy at Alkermes
Tickers ALKS
Tags patient advocacy healthcare access NASDAQ:ALKS
From 3BL Media: Corporate Social Responsibility, Energy and Health News
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
Tickers RWD RWE
Tags Real World Evidence Cancer Pharmaceutical
From PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
Tickers PRO RWD RWE
Tags biotech Healthcare patient reported outcomes
From PRUnderground
Ensuring No Duplicates: Implementing Pulse Infoframe’s GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
Tickers RWD RWE
Tags GDPR no duplication LouLou Foundation
From PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
Tickers RWD RWE
Tags drug development patient advocacy Patient Registries
From PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
Tickers RWD RWE
Tags drug development patient advocacy Patient Registries
From PRUnderground
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