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Reclaiming the truth about alopecia areata as an autoimmune disease

By: Brandpoint

September 08, 2025 at 00:01 AM EDT

(BPT) - When a teenager starts losing their hair, the world often rushes to offer reassurances: "It's just hair." But for the nearly 7 million people in the U.S. living with alopecia areata, many of whom are adolescents, that phrase couldn't be further from the truth and actually can cause unintended harm.

The truth is: Alopecia areata is not a cosmetic concern. It's a chronic, unpredictable autoimmune disease that causes the immune system to mistakenly attack hair follicles, resulting in partial or complete hair loss on the scalp, face or body. While it may seem like a surface-level issue, its impact runs far deeper. It can affect mental health, social well-being and access to care in ways that too often go unseen, especially for young people.

"Getting treatment changed everything - not just my hair regrowth, but myself," says Sarah Greene, 16, who was diagnosed at 8 years old despite showing symptoms since the age of 2. Sarah is now on an FDA-approved treatment for patients that helped regrow their hair and restore confidence.

Sarah wearing a whie and blue gown walking next to a stone and brick building.

A serious autoimmune disease, misunderstood

Alopecia areata can appear suddenly, at any age, and progress unpredictably. One day, it might be a coin-sized bald spot on the scalp; the next, it could mean total hair loss across the entire body. Some cases go into remission, others recur and some progress to more severe forms like alopecia totalis or alopecia universalis. The severity and emotional toll vary, but one thing remains constant: It is not simply cosmetic.

Still, unlike other autoimmune conditions like rheumatoid arthritis or lupus, alopecia areata is frequently miscategorized as a superficial or aesthetic issue. This mis-categorization isn't just frustrating. It can be devastating.

When 'cosmetic' becomes a barrier to care

Many insurance companies still classify alopecia areata as a cosmetic condition. As a result, even when FDA-approved treatments are available, patients, especially adolescents, face unnecessary roadblocks to the treatment they need: denial of coverage or administrative hoops to "prove medical necessity" while creating wasteful healthcare spending.

Parents often find themselves in lengthy battles with insurers or face challenging decisions, while their children experience worsening symptoms, bullying and declining self-esteem.

Alopecia doesn't just steal hair. For students, it can mean unwanted attention, questions they're not ready to answer, and feeling different at a time when they just want to belong. Too often, the right treatment is just out of reach.

Access and equity: Not everyone gets the same chance

For some communities, the barriers are even steeper. Black and brown adolescents often experience longer delays in diagnosis and face systemic inequities in care. In rural areas or under-resourced schools, there may be few dermatologists, little awareness and no peer support. These disparities mean that access to care is not just about medicine; it's about justice.

Newer therapies, like JAK inhibitors, are often made harder to access for families due to the misclassification of the disease. This deepens health inequities and limits opportunities for those who need help most.

More than hair: Why holistic support matters

Treating alopecia areata effectively means more than writing a prescription. It requires a whole-person approach that addresses the mental, emotional and social effects of the disease. An approach that many insurers are starting to embrace in theory, but in practice, still have more work to do.

Teens living with alopecia often report feeling withdrawn from sports or social activities, avoid photos or endure bullying at school. That's why effective insurance policies that break down barriers to treatment, along with support groups, school accommodations, peer mentorship and mental health care, are critical parts of the care journey.

Organizations like the National Alopecia Areata Foundation (NAAF) offer essential resources for young people and their families, connecting them with community, educational tools and advocacy efforts that can help them reclaim control over their health and their story.

It's not just hair - It's so much more

It's time to reclaim the truth about alopecia areata and rewrite the narrative. Alopecia areata is a legitimate medical condition that deserves serious attention, adequate insurance coverage and respect. Children living with this disease should not be left behind simply because their symptoms are misunderstood.

What can you do?

Refer to alopecia areata as an autoimmune disease, not a cosmetic issue, to help correct the way the disease is discussed.
Advocate for fair insurance coverage including the reclassification of alopecia areata as a medical condition so all patients, especially young people, can access FDA-approved treatments they need, when they need them.
Share mental health and social resources for teens navigating the stigma and emotional toll of hair loss.
Visit NAAF.org to access resources, connect with others and join the movement for equity in care.

For adolescents living with alopecia areata, it's never just hair. It's everything that comes with losing it, and everything they deserve in getting it back.

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Reclaiming the truth about alopecia areata as an autoimmune disease

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