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Latest News about rare disease platform

Recent news which mentions rare disease platform

Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
Tickers RWD RWE
Tags RWE drug development Timothy Syndrome
From PRUnderground
Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
Tickers RWD RWE
Tags CKD patient advocacy Centralized Platform
From PRUnderground
PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
Tickers RWD RWE
Tags Patient Registries FDA Real/World Data
From PRUnderground