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Latest News about RWD
Recent news which mentions RWD
Timothy Syndrome Alliance & Pulse Infoframe collaborate on registry for rare CACNA1C-related disorders
March 24, 2022
Tickers
RWD
RWE
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RWD
drug development
Patient Registries
From
PRUnderground
The Myrovlytis Trust Leverages Pulse Infoframe’s Platform to Study Birt-Hogg-Dubé Syndrome
February 17, 2022
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PRO
RWD
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Patient Registries
RWE registries
drug development
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Ensuring No Duplicates: Implementing Pulse Infoframe’s GUID Model to Transfer and Link Patient Data from Study to Registry for Rare Disease
November 23, 2021
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RWE
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RWD
international study
Global Unique Identifier
From
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Alport Syndrome Foundation Joins Pulse Infoframe’s healthie™ Kidney Disease Patient Registry
September 14, 2021
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RWE
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Patient Registries
RWD
rare disease patient registries
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PIP-UK to Celebrate Poland Syndrome Community Register Project at Annual Family Conference
August 12, 2021
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RWE
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Centralized Platform
Real World Evidence
PIP/UK
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